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RARE ASSIST provides personalized concierge support to physicians navigating Individual Patient Funding (IPF) access for hypophosphatasia (HPP) treatment.

For Healthcare Professionals only. This tool is intended to support physicians in the IPF access process for HPP therapy.
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🧬 HPP Concierge Service

Welcome to RARE ASSIST

A personalized, end-to-end concierge service helping physicians initiate HPP therapy in less than 3 months from confirmed diagnosis.

< 3 mo
Target time to
therapy initiation
End-to-end
Compliant support
across the access journey
IPF
Specialized in Individual
Patient Funding markets
What is RARE ASSIST?

Rare ASSIST is a personalized concierge service designed to support physicians — particularly in Individual Patient Funded (IPF) markets — to initiate therapy for hypophosphatasia (HPP) in less than 3 months from a confirmed diagnosis.

Despite progress in diagnosis, many patients experience months to years of delay in accessing treatment. RARE ASSIST addresses this by providing end-to-end, compliant support across the full access journey.

Barriers We Address

Unpredictable and prolonged reimbursement and funding processes

Complex, country-specific regulatory and documentation requirements

Fragmented coordination between clinicians, patients and payers

Gaps in clinical documentation, evidence standardization and severity assessment

Broader bureaucratic, policy and healthcare infrastructure constraints

How We Support You
🤝

Care Coordination

Dedicated coordination between your office, patients, payers, and Alexion throughout the access process.

📋

Documentation Support

Assistance preparing medical necessity packages, severity assessments, and application materials.

📤

Application Submission

Guidance on submitting IPF applications to the relevant health authorities in your country.

🌐

Ecosystem Connection

Links to advocacy resources, patient associations, and specialist networks in your region.